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Thursday, December 15, 2011

Ok so the surgery that is coming up monday is not the heart surgery that we need. It is only to test the pressures in Haleys heart. We will compare those pressures to the results we got during the first catheter back in august. Hopefully this information will then lead to the actually heart fixing surgery.

I am nervous. There are so many questions, that we may or may not get the answers for. God only knows completely applies to this situation!

So I am in an online group for parents with PH kids. We decided to have our kids send each other christmas cards. It is so great. Haley has gotten about 10 already. She loves getting mail, especially from these phriends! So we were writing up our cards last night and nick came home and asked who this girl was we were making a card for. Haley answered it is for a girl like me. Nick said really and I sarcastically said yes exactly like haley. We did that twice before he looked at me seriously and surprised and said again really. Then I understood he thought i was serious. Oh no no one is like Haley. Haley just knows these are kids who understand oxygen and daily meds. It was funny. maybe you had to be there.

So we got our tree up and I love it! The girls and dad decorated it, it is surprisingly even. If nick would let me I would keep a decorated tree up all year! Each year we get a new ornament for each of us. We have been married long enough now that all the ornaments are ours, as opposed to hand me downs. But each one has a meaning whether it was gotten by us or gifted to us. I could just look at it all day and reminisce about when we got each one. Haley made her first ornament at school. they had a day where parents came in and she gave me our gift wrapped up and wanted me to open it, so i did and it was the ginger bread ornament she decorated and put her school picture on it. So here I am in the middle of her classroom with everyone around trying to fight back tears because i love it so much!

Yesterday we got to go to As You Wish to paint some ornaments, through Hopekids sponsored by US Airways. It was so fun, Ashley was over it in about 10 min, which is actually pretty good for a 2 yr old. I will have to post pictures of them when we get them back.

I have been in Nicks family for over 11 years now, and I am pretty sure the first time his mom saw me cry was after this past august. And since then she has witnessed that probably 4 more times. Of course it was really only because we did a class at church together and everyone knows the best place to cry is at church. haha But it seems since the news cracked me over the head I cry at anything! I guess now I realize just how precious the little moments are.

I hope everyone can realize and experience those little moments during this Christmas. It can be stressful and overwhelming if you let it. Money (and time) is tight for most of us, so this year our family is giving hang out time instead of gifts. I know for me, I would rather hang out with my brother for the day then see him for an hour and get a gift. I know my girls feel the same way.

I will plan to take my computer to the hospital monday. We need to be there by 1030am and the catheter starts at 1230. It will be a few hours then we will stay for 6 hrs so they can watch her and make sure all is well before we leave.

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