Blog Archive

Thursday, January 26, 2012

 Thank you everyone that has been praying for us. Haley is doing well. She is over tired with tons of energy which doesnt make a good combination. I have learned that this is typical for PH kids.
So this past weekend we went to Toy Story 3 on Ice. The girls loved it! It was really good. Haley got into the whole thing but Ashley got really excited when mickey mouse came out before and after. We also got to go see the adventures of Tin Tin. I was not sure what to expect but we all loved it. Then tuesday night Ashley got to spend the night with grandma, while nick and I took Haley on a date to her first suns game!! (All this was through HopeKids, made possible by wonderful donations! thank you!!)

So I was a bit nervous at first Haley was completely not into it. She was playing around and getting in my way.....being a 5 yr old. LOL Then about half way through the first quarter i started giving her a play by play of the game, and she totally got into it. She was screaming and dancing! Each time the suns made a shot she would get so excited and hug me. We bought her a Nash jersey a couple years ago and I made her wear it. It was white, with out flowers, puppies or quads:-) she didnt like it and held her sweater closed. Until she figured out what it meant. Then every time we made a shot she would hold her sweater open and scream, and hug me. She would ask every few seconds whos ball it was. We were losing so naturally alot of people left during the 4th quarter. One side of our row was now empty and Haley took the opportunity to have more dancing room. It was a good opportunity to teach her about being a good sport, but we were right behind the hoop so during the second half the raptors would shoot towards us and we would scream and boo and Haley had some clapper things. She is insane. One sun got thrown out for having a bad attitude and "accidentally" bumping the ref. There was an elbow to the eye and a bonked head. Haley was so worried about them, until the game continued and she was over it. After the game Nick took Haley down to the court so she could shoot a free throw. They even let nick shoot one!

Suns lost to the Raptors, but it was by far the BEST game EVER!

I got to call poison control yesterday for the first time. Yesterday was just a tough day.
It started out good, then i found my jury summons that I had forgotten about. It was for Jan. 25th....yesterday. now Im stressed about having jury duty, I called, the recording said my group had to call back at 11am to get the time when i was needed, the others were dismissed. I have to get ashley from grandmas and figure out someone who can watch ashley, take haley to and from school and then to dance. My worrying made Haley worry. we packed up her school and dance bag and her afternoon medicine. Then we got to grandmas and she was having a day like ours too. So we stayed for a bit, but with all the frustrations, it was too much for Haley. She can handle ALOT but when me and grandma are both flustered, haleys world is flipped. We went home, I put everything on the counter and sat down in the living room with Haley so she could read to me. As she is reading I hear Ashley messing around in the kitchen, I figured she was in the cabinets, it should have clicked that she was oddly quiet. I didnt want to interrupt Haley knowing it would throw her off.  So a few minutes later Ashley walked in and informed us that she took Haleys medicine. I believe my words were oh shit. I can smell the marshmallow, it was sprayed on the floor, her step stool and her pants. I asked her if she just squirted it out or if she ate it. She ate it. I called the Pharmacy who told me to call poison control. Haleys worried and Ashley is feeling pretty bad about taking it. I told the lady what had happened and the name of the med, she asked how much she took I said 8ml. The med usually comes in little blue pills and is used typically for a completely different reason, She asked if she took 8 pills, I explained that this was compounded, made into a liquid. The PC lady said oh I think we are talking about different meds. Nope, its what you think it is. I explained it was for PH. She needed to do some research and put me on hold. she gave me signs to look for. and they called but an hour later, then an hour after that. Ashley was fine, her face was flush a bit and she said her tummy hurt for a few hours after that but it didnt stop her from being normal Ash. All is well.
Since we started meds we have talked with the girls about taking other peoples meds. How you can get very sick and all that. Ashley knew better but the temptation was just too much! I get it Ash. cookies do the same to me! The crazy part is, Ashley is growing up. She can get into higher things now. The medicine was in a syringe with a cap on it and in a small plastic pencil box. She got the box open, took the cap off, took the meds, put the cap back on, back in the box and closed it. I believe I have my hands full!
Oh I called on my jury duty and my prayers were answered. My group had been released!! Ate lunch took Haley half way to school then turned around because I had forgotten to give her the meds! I run in, all the big syringes had been used so I had to use a 5ml and a 3ml. Jump back in the car and give her the 5, all is well, then for the 3. it is so small and comes out super quick, it is ridiculous, so most of it gets in her mouth, and the rest some how got on her face, hair and the car door! Good times. After that the rest of the day was pretty smooth.

Today we get to do the monthly blood draw, dont worry I have purple band aids. Then Tuesday is our appt with the cardiologist. Chatting, echo and schedule the next catheter! I will update after that. Pray for good news!

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