EVB Live

Here is the video Scott Light did for Channel 12. I talked with him for about 2 hours. He did such a great job of taking what I said and explaining it well and quickly.
http://www.azcentral.com/video/1574139205001

We saw the pulmonologists today. She was very nice and gave us some info about a couple specialists in denver and texas. We got a x ray of her lungs for informational purposes and we will be getting a sleep study. She is worried if she has obstructive sleep apnea and we choose surgery she will have a very hard time breathing after all the breathing tubes and things. She did tell us that if we choose surgery we will be in the hospital for a long time and the weaning off of the breathing machine and balancing the meds would be in very small increments. we have some doctors that we are looking into at the hospital in denver, texas and cali. Its not the surgery I am afraid of, it is the after care part. Hopefully our cardiologist will call me tomorrow and make an appt for a sleep study and to chat about our options. I am excited about Kid to Kid tomorrow!