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Wednesday, March 13, 2013

Heart Surgery **UPDATED**

Haley went back about 1130am. She did pretty well. There were some tears. after the pain of the lung biopsy, she is scared of the pain. By the time she was through the OR doors she was calm.
I just got a call from the nurse. The surgeon just started surgery about 1pm. They said they put in a 2 IV's, an arterial line, and a central line in her neck. The neck thing weirds me out, my poor baby!
She will come out with those lines, a breathing tube, folley cath, drain tube, I think thats it....
I will update when I have something to update. :-)

Haley did really well during surgery. She came out on oxygen and nitric, and about 20 other meds. She has the breathing tube, feeding tube, central line in her neck, IV in her hand and on her ankle, folly cath, O2 censors stuck to her forehead and her lower back, drain tube, a heart stimulator (we havent needed it, praise God) and about 20 lines going into her central line of meds. The plan today is to slowly wean her off each med on at a time and move toward taking her off the breathing machine. She is off the paralysing med so she is moving her feet, squeezing our hands, she even opened her eyes and gave us a bit of a smile. they tried to take her off the first med, heparin, but her stats plunged so she went back on. We will give her more time to rest then try again later. Right now she knows she cant move and that frusterates her. I can see it on her face sometimes. Poor girl. Based on the time, I am going to say she will be on the machine at least until tomorrow. Taking her off the breathing machine is probably the scariest part. That will tell us so much on what now.

Last night we were that room where all the alarms were going off and everyone is running to the room. Yeah the machine that is breathing for Haley malfunctioned. Stopped working, she is paralysed so she could not breath on her own, her stats dropped. The nurse quickly started bagging her and the stats went up. He said the first breath went in easy so it wasn't a pulmonary thing otherwise it would have been tough to get the air in. We got a new machine and the rest of the night was pretty low key.
It was only for a few seconds, but that is not a good feeling to see your baby laying there not breathing.

The plan was to take the PDA device out, clamp the PDA annd fix the top VSD. During surgery the surgeon made the call to do that plus partically close the bottom VSD. She had a 12mm and  14mm holes and now she is down to one 6mm hole. That is a huge difference! But the new hole, if possible later, can be closed through a catheter.

Please keep praying, today and the next couple days are going to be HUGE! thank you so much!

4 comments:

  1. Continuing to pray for all of you.

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  2. Hi honey, praying continously for your sweet Haley. Praying for you, Nick, and Ashley too. Iknow how hard it is to trust the Lord with our little ones under these circumstances, but He is with her and He will comfort and keep her through all of this. Love to you all-Aunt Shaunie.

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  3. On my knees, sending my prayers
    Jen and Teagan

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  4. Keeping Haley, her doctors and all of you in my heart and prayers these days. I just know this is going to work out well. I pray for your energy and patience to get through all these tense times. Keep the Fatith!!

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