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Monday, July 22, 2013

Email from doc

Just got the official report from the cath. Her doc added an email with it. Saying he is not as encouraged as he had hoped with the results and sending it to the specialists to see what their take is. He says we might want to start seriously thinking about starting the new med in the next couple weeks.
The new med makes me a bit nervous, it has way more side effects, and is kind of a nothing else is working last resort med. it has different strengths though, we shall see which one they suggest starting with.
Sometimes I just don't understand, she seems so normal. But really she's lived like this for so long her body has compensated and gotten used to working like this. It's just unreal to see her acting normal, fully knowing tomorrow could flip our world around again. I'm sad for her, she's just a babe, who someday, sooner then we want, will no longer be able to run and dance and sing. I am so thankful she is able now and for everyday she's here regardless of her activity level, we will make the best of whatever comes our way.
I am so thankful for her cardiologist. He is a great person, he understands how much we understand and want to know, he is very straight with us. I love it, I'm not into hiding how serious this all is, or sugar coating. It's extremely hard to hear and discuss but I know it has helped me a ton to know more.

God help us through this, give us that wisdom that you have always provided. Thank you for everything you've given us through this stupid disease. Carry my girls.
Can I get an AMEN?

We have so much love for all of you who have been with us. Thank you.

1 comment:

  1. Wow Kassie. You are such a strong woman and you have so much faith. Haley is lucky to have you standing by her. We will keep praying for her healing and for you guys. God Bless-Krista :)

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