Finally AN UPDATE!!!

Well its been awhile.....

The past two years have been filled with change. Little of it having to do with Haleys health, thankfully. Nick and I got divorced last October. Im not going to get in to all that on here, but i thought its important to disclose. Both girls are doing well considering the changes that go along with divorce. Haley is now in 4th grade, Ashley is in 1st!! They grow so fast! As every parent says, I wish I could slow it down. I love them so much, they are growing into young ladies!

Haley has been doing extremely well. She is starting to become tired even more easily then before. She is still able to run jump swim play.... just cant go as long as the other kids.
Her nose bleeds have been coming back. At the end of September we were back in the hospital for a few days due to a bleed. She went in to get scoped by the ENT, to see if they could find where the bleeding is coming from. They didnt find much, but cauterized with silver nitrate inside her nose. So she didn't have the huge jelly plug like the last nasal scope she had done. She only had some black stain under her nose for a few days. She is such a trooper, she still went to school and wasnt even worried about it.

We did have some blood tests run by the hematologist, to check for bleeding disorders. She was cleared for the obvious ones. She is getting tested for thylasemia again. Nick is a carrier, she was tested when she was younger, test came back negative. Her hematologist said that the test needs to be done by someone who is trained in thylasemia, bc the results can be miss read or something can be easily missed. So we are testing again and getting Ashley tested as well. The doc says it can lay dormant for years, then pop up later.

There hasnt been much more then that in the past two years. She is still taking the same meds. We will be discussing a catheter in the nearish future as well as getting her tonsils out with her doc.
Her tonsils have been swollen for awhile, we are looking to get them out while she is healthy, because of the risk of putting her under. If we wait until its urgent, it will be more risky.
The doctor says that should be after the winter season. He said viruses can hide quietly in there and once we start messing with her tonsils, it can wake the viruses up and Haley can become very sick after surgery if we do it during flu season. It will most likely be mid next year.

I found a notebook I wrote letters for Haley in while we were going through the thick of things. I was reading it laughing and crying. I was amazed how we handled everything. I may go through in the next couple weeks and share some of them.

Thank you for all your prayers. Haley is a miracle!