I added a tab over on the left called Haleys Life Fund. where you will find event info and things like that.

I passed out fliers today at church. They announced  the kid to kid sale in front of everyone. I about passed out when she asked me to stand up. Instant sweaty hands, heart beating so hard it hurt, muscle spasms.....it was ridiculous. I didnt even have to say anything. :-)
 I always feel so loved there, the women i get to talk to help me keep my head on straight. Ill tell you what, I can feel my self sometimes starting to spiral down into a place I dont want to be, I have to remember who I am and who is in control, always. It would be so easy to crawl into a corner and cry. Having to explain it over and over again, like I did today makes it just that much more tempting. But I know that doesnt help anyone. Today was tough also because people who dont know assume that everything is fine, she'll have surgery and all will be well. I get frusterated and I know I shouldnt. I just want to say "not to be a downer but actually the decision we have to make could kill her, or make her quality of life way less."
Still I have HOPE that she will be healed and live a beautiful joyous long healthy life. But I am realistic and I dont want to talk about that right now.
We see the doctor next week to see what the experts say. I am not ready to have to make a decision. The closer it gets the harder it is not to throw up everytime I think about it.
I am so blessed to have my girls. I am blessed to have my husband. We are blessed to have the relationship that we do. We are blessed to have our parents, family, friends, our church and our God. I do believe I wouldnt have been aware of all we are blessed with without this journey we are on.
There is and will always be JOY in the Bonura household.

I will never be able to thank you all enough for all the love and support you have given us the past 8 months. Please know we love you all. Even if we have never met, just to know you are here checking up on Haley means the world to us.

                     I just love this picture, shows just how much of a badass Haley is. hahaha:-)