Tuesday

So we talked with Haleys doctor. He said he doesnt have all the info we want. Including some of the doctors opinions and the pros and cons of each choice. He did tell us that the doctors he has heard from all pretty much said the same thing, and that was it is worth a shot if  the family wants to take that risk. I dont really like that answer. I am getting the feeling docs dont want to recommend anything because all of our options suck. Her doctor said we will gather all of the info we can over the next week or so and then we will get together to chat about it.

The other day i got a phone call from Scott Light from Channel 12 news! I was so excited. He is coming over today to chat with Haley and me and that should air friday afternoon between 4 and 530 on EVB Live! Also Erica from Kid to Kid will be on showing and talking about the event and some of the things they have to offer! So I about died standing up infront of women at church......lets see how I do on TV! I am so glad they are taping it. I just hope I can get across what PH is and how people can not only help us as a family but all the kids who are dying from this disease.

Haley is doing well. My good friend gave us a camelback that happens to fit Haleys O2 tank perfectly! She now can wear it as a back pack and be hands free. She can ride her scooter and swing again!

Please keep spreading the word about the Sale this Saturday! Channel 3 Your life A-Z will be announcing the sale on Thursday as well!